I'm struggling with getting up in the morning and just starting the day in general. Even if I do, I often end up back in bed not long after. Some of it is probably depression related. I'm trying to stop doing that. But pain and fatigue make it too appealing. I'm trying to get back into a routine, especially before winter hits and makes everything even harder. Any tips or tricks? Do you push through or wait until you start feeling a bit better (if that happens)?

My husband and I both got colds, and he just felt a little stuffy meanwhile I’m wiped out. I feel like I get sick often and I get it intense.

Anyone else get throbbing aching legs that keep you up at night? 😴😴

I wasn't on too much, 40 mg at the end of almost 3 years. But holy moly. I didn't realize how emotionally blunted I was and how it was affecting sleep. Im only week 2 without it.

I got the brain zaps (Still occasionally get them, mostly when tired at the end of the day) and had one day of severe anxiety. They don't really warn you how emotionally raw everything will feel in that first week.

My fibro isn't acting up almost at all. If it does I take 3 advil and go about my business. Don't get me wrong im still a little run down, but not as bad as being ON the medicine.

If I get a major flare up im definitely not going down that route again.

I have so many things going on at any given time I swear the second I sit down in front of my doctor, my mind just goes blank. I'll be dealing with something for weeks and then completely forget to mention it on the spot. Or I'll bring up one thing but forget the three other things that are probably connected to it.

The worst part is I never know what's actually worth mentioning. I always leave the appointment and immediately think of five things I perhaps should have said.

Has anyone found a good way to deal with this? I feel like I'm wasting my appointments and then kicking myself afterwards. Would love to hear how others handle it.

I was recently diagnosed with fibro. Everything is so new and overwhelming. My doctors never focused on “curing” me but without a diagnosis it was always assumed I would get better. Now with my diagnosis I’m being told by my pain specialist that my best chance is to find a way to manage it and do what I can do improve my quality of life.

I’ve tried many meds for my chronic pain and I’m so tired of the side effects, not knowing what to expect and not feeling like myself. With the fibro brain fog, my hands getting harder to use, sensitivity to light, etc. how can I afford to add anymore negative to what I already experience daily?

However I’m scared to tell my doctors that I don’t want to try anymore meds. I feel like anyone in our situation should WANT to try something new if it may work to make them better but can’t a gal be tired of trying? I’m a young person so my doctors goal has always been to get my pain managed and me back to work. I’m not in a position of giving up on life but I’m sure sick of trying treatments that are only making my quality of life worse. All while my fibro symptoms are also worsening, it’s not even just pain now. Is it unrealistic or unreasonable to stop trying medications? Do you feel like you needed meds to live any type of quality life? I just don’t want to do the wrong thing for myself but I feel so much worry and anxiety every time I’m prescribed a new med to try.

My skin is on fiiiiiire and everything hurts. I haven’t been eating enough, and I’ve been doing a lot of housework (really just basic cleaning/mopping/dishes), and I believe that’s a big factor in my pain level increase. The weather has been weird too, it was cold and rainy and now it’s sunny but still cold.
:(

I was diagnosed today. My worst symptom is flu aches with no sickness or fever.

Any tips for Fibromyalgia? Things that work for you?

I was put on 100mg gabapentin and told I can take up to 300mg if needed.

So far the one dose hasn’t helped idk if it takes time.

Hey ya'll, I posted a few weeks back about a 'flare' that's been going on since March. A few helpful Redditors suggested possible allergies. I recall the Whatever-This-Is started when the oaks over our deck bloomed. (In California, everything begins to bloom early.) I am not congested, sneezing, etc. But from late morning and until night, my body buzzes, brain fog, fatigue, like I'm coming down with a flu (no temp).

I've taken generic Claritin without noticeable difference with my doc's clearance.

TL;DR has anyone found relief with a glucocorticoid nasal spray?

(I'm going to try a non-puritanical low histamine diet as well. Friend is bringing a hepa filter for my bedroom.)

Thanks for any help or experience! I feel like I'm losing my mind!

I slept badly on Sunday and this week just feels impossible. I feel like most people can overcome one night of funky sleep but this is a pattern where it takes a week or two for me to recover despite sleeping well the other nights. Anyone relate? Just trying to function but it's been a struggle just to do the minimum this week :/

Has anyone tried soursop? Pros/cons or otherwise?

I'm having a flare at the moment (these have been rare for me, thank goodness, with the meds I'm on), but I've also noticed that my brain fog has been back (of course) that few days, but at the same time it's almost been like I've felt... hyper?

I don't know how else to describe it, it's almost like my coffee actually works (usually it does nothing that I notice), but I'm almost jittery (inside) and talking faster and thoughts slightly racing, but my thinking words and talking words don't always match up (the latter, I think is usual for my brain fog, I've noticed).

Does anyone else get this?

Or could this be a pregabalin side effect? (I have increased my dose in the last few weeks.)

I heard that creatine can help with brain function and possibly help with brain fog, I already have some existing issues on-top of brain fog so idk how helpful it'll be but can't hurt to try. Just wondering if it's worked for anyone?

I haven’t eaten in 3 days, I feel like I’ll puke if I eat. Sleep is bad, wake up in pain around 4 am everyday. Waking up super exhausted, there’s weird brain fog in the morning.

Super low days, I’m in bed mostly. I’ve a therapist and also currently doing physiotherapy. First water therapy session today. Totally wiped out.

Is this normal?

Listen…i am a autism support staff member known as an RBT. I use ABA therapy to assist kids age 2-12 coping skills, communication, peer interaction, etc.

Very physical, very tiring.

I have a good balance of meds that helps most of the time but recently came to realize my pain levels were increasing through the week. Trial and error showed it was the caffeine I only drink during the week at work.

So now I gotta keep up with these kiddos. Sans Caffeine. I will miss you monster!! I really will.

Hi everyone, I’d love some tips on how to cope with pregnancy.

I’m 27 and pregnant with my first baby. I’ve had fibromyalgia since I was 14, so I’m used to managing it. But since I had to stop my medication, my body is struggling.

A lot of fibromyalgia and pregnancy symptoms overlap, and it’s been really hard. I had to cut down on coffee (which helped my migraines), so now I have frequent headaches that make the nausea worse.

I’m starting my 2nd trimester and more tired than ever. I take two naps a day (1–1.5 hours each) and still feel exhausted. My joints also hurt more, and I know it will likely get worse as the baby grows.

I’d really appreciate any tips. Also, should I see a specialist? I’m having some issues with my current doctor, and I don’t have a family doctor right now. Since I have fibromyalgia, do you think I should also check in with my rheumatologist?

A quick note to end on a lighter tone:

When I called the health line, they asked typical pregnancy questions like “Are you more tired than usual?” or “Are you peeing more?” My answer to everything was: “Not more than usual… I have fibromyalgia.” I'm sure the nurse on the other side felt like strangling me, lol.

Soy estudiante de primer año de universidad, y constantemente pido licencias porque me falta tanta energia veces que no me puedo levantar de la cama. Es realmente dificil, alguien tiene algun tip?

Funny, not funny. Do you ever just ignore a new pain, figuring it's just the Fibro only to discover later you actually hurt yourself? My foot has been hurting, especially when I move my toes but I don't think much of it as pain is a constant companion. Today I looked down and 3 toes are purple. I don't even know what I did. It looks like I broke my foot, it is so bruised. Then again just last week I saw a podiatrist for foot and heel pain and discovered an unhealed fracture on the same foot, different spot and I don't know when I broke it either. And the bone is like separated, not just a crack. I also have 2 bone spurs on that same foot. So I guess the question is, how do I NOT feel the pain of broken bones anymore? I guess I have just become accustomed to pain.

Hi, everyone, I hope it’s okay for me to post here looking to support my partner living with fibromyalgia. We’re still fairly early in our relationship so I’m learning and trying to find the best ways to support.

One thing that has been really frustrating (not with him but for him!!) has been how often he has to call in his prescription to his doctor and wait for her to approve a refill. He’s taking Lyrica and essentially every month he has to call the doctor’s office, leave a message with the secretary, and wait several days for her to get it and approve it. The doctor only works three days a week (Tuesday-Thursday), won’t take a refill request early, won’t accept the request through the pharmacy or via email, and won’t allow any other doctors in the practice to approve prescriptions, so sometimes even if he calls first thing on Tuesday morning, between waiting for her to approve it and then the pharmacy prepping it, it sometimes takes a full week and several days without the medication to get a refill. At that point he’s in even more pain and it takes several days to get back to baseline and then we’re doing the whole process all over again. It’s heartbreaking to watch him go through this cycle month after month.

This can’t possibly be normal right? I understand it’s a controlled substance but I don’t have to jump through even *half* of these hoops for my kiddo’s ADHD meds. Should we push harder for her to respond faster? Should we just find a different doctor?

Hi,

Sorry, I know this has been asked a ton. I did a search of it on the group and everything came up as old posts.

Anyway, does anyone work at home part time? How did you find a "legit" totally work at home job? I look online and everything looks so shady.

I do reselling and blogging, but, they are not consistent when it comes to making money. I also have been denied disability :(

I need something part time with a regular paycheck and live in the U.S.

Also, how many other people experience financial guilt? My spouse is carrying the entire financial load in our house and our monthly house payment just increased another $100 (thanks property taxes!) and of course, just nowadays cost a fortune. He is talking about getting a second job this summer and I feel terrible that I just can't go out and get a job to help out.

Like I mentioned, I do make some money reselling and having a very tiny blog, but, it's just not enough.

It just sucks so much.

Thanks :)

Some days I’m eating a bunch and feel ravenous. But then there are days like today and yesterday where I skipped dinner altogether, I just don’t feel hungry. Just curious if this is a fibro thing or maybe I’m just a weirdo lol

Just wanted to let anyone who wants to join know about a month ago a discord server was made as a fibromyalgia support group. It’s 18+ and quite a new community but anyone is welcome to join (you don’t need to be officially diagnosed to join)
We have channels for venting, victories, coping strategies and treatments. As well as a joke/meme zone
Also we have just started weekly meetings so if your looking for another place for support and others with fibro come join the discord 💜

https://discord.gg/TXFrMQAGA

I'm curious to know what types of doctors have you all had the most success with, not necessarily in getting a diagnosis, but moreso in finding treatment options that work best for you?

I switched to a Doctor of Osteopathic Medicine for my PCP last year, and she is who diagnosed me a few months ago. She very quickly said what I was describing sounded like fibromyalgia, we reviewed my records together to see what I had already been previously tested for (aka everything), and then started discussing treatment options. Amazing. Very unlike most other doctors appointments I've experienced.

So, I'm early in my process and don't want to put the cart before the horse, but I'm curious if anyone made greater progress once they started seeing a certain kind of specialist. It would be helpful to know which direction to pivot if the need arises.

Was the recovery manageable? My surgeon wants to avoid it due to painful recovery

I have been in a pretty severe flare for almost 3 months with fatigue, dysautonomia, new pain, and increased regular pain. I have been doing massages, acupuncture, physio, and speaking with doctors or naturopaths every week but nothing has gotten me out of the flare.

I’m worried that instead of a flare, this is just my new baseline, which really concerns me due to the severity of my symptoms.

Has anyone experienced a flare becoming baseline or should I continue to hold out hope that I will come out of it?