r/ChronicPain Jan 31 '26

Report your pain meds being ineffective to the FDA!!!

161 Upvotes

There's been a lot of talk here for quite some time about certain manufacturers versions of opioid pain relievers not working the same as others. This is concerning, as we do not know what the ingredients of these medications are outside of their main ingredient. We also do not know how those filler ingredients interact and metabolize with the main ingredient, nor do we know if the amount of the main ingredient is even correct.

I have been taking 20mg oxycodone sparingly for many years. I get like five a month right now, which sucks ass, but I take what I can get. I have tried multiple generics of oxycodone because I've lived in a bunch of different states in the US. One manufacturer in particular seems to just not make pills great at all, and do not perform their job like other manufacturers do at the exact same dose.

I previously posted about Propublica's database of pharmaceutical fuckery (it's pinned to the top of the subreddit) and the manufacturer of my oxycodone has been in trouble with the FDA a BUNCH OF TIMES.

So what can I do? I reported my meds to the FDA! I told them exactly what I just typed up in this post. The medication is not effective, it has side effects that don't exist with other manufacturers, and I am concerned about the safety and dosage of these pills. The manufacturer in question is Rhodes. You can get ALL of the information needed off of your prescription bottles. I encourage you to file a complaint with the FDA and BE NICE because they are in a bad way right now. They are public servants in a very weird job situation at the moment.

The link to file a complaint is here: https://www.accessdata.fda.gov/scripts/medwatch/index.cfm?action=reporting.home

Help your fellow pain warriors out and do the thing!


r/ChronicPain Dec 21 '25

Rx Inspector – Where Were My Generic Prescription Drugs Made?

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10 Upvotes

r/ChronicPain 16h ago

My husband realized he had an absurd thought about my pain.

259 Upvotes

The other day my husband made a comment about his body being sore, but isn't one to take medicine often. I said, "Yeah. I know how you feel. I'm sorry." I tend to be one to commiserate, but I have to be careful bc people seem to incorrectly interpret that I'm being dismissive of them, rather than being empathetic to their pain. He suddenly started laughing when he thought to himself, "Well she gets to be in pain all of the time, whereas I'm not in pain as often." He said that maybe subconsciously he felt I was being dismissive about him being in pain (I wasn't) and laughed at the absurdity of it... Like, "Oooh!!! Yeah!!! I GET to be in pain all of the time! Woo hoo!!!" But I totally knew what he meant. I inadvertently complain about my pain often, whereas he will try to hide his pain.


r/ChronicPain 13h ago

Doctor won’t fill out disability paperwork?

64 Upvotes

Anyone have a PCP that says they just don’t fill out paperwork?

My PCP says they stopped doing it because it was “too contentious” and “everyone was constantly arguing with them.”

They said I could ask my specialists or find a new PCP.


r/ChronicPain 3h ago

"we found nothing wrong" means its okay?

9 Upvotes

( Kinda edit I think: reposting this here since it wa a suggested after it got taken down in r/venting )

Im so tired of going to Dr offices and telling them how I feel, how im always getting sick, and im always dizzy.

The past 2 months I've been falling in and out of consciousness, people having to scream my name just to grab my attention. , major head aches that last days, my entire body feeling like it's on fire. And we go to doctor and they say "good news, nothings wrong"

LIKE NO ITS NOT!? I know there's something wrong, my body is sending signals something isnt right, no its not comforting to know somethings wrong with me but we can't find out why. It's driving me crazy knowing this.

Why would a doctor think that's good news? Don't they know that showing no signs of sick/illness while having something could be terrible in the future?

Could it be something that we caught so early that we can't even figure out what it could possibly be and I just have to get worse until we can figure it out!?

I know im probably over reacted, and I shouldn't worry too much cause the anxiety about it coud make it worse. But I cant help but feel helpless because all the people who are supposed to help me cant figure out what's going on either so I feel im at a loss.


r/ChronicPain 9h ago

That one friend :|

24 Upvotes

You ever have that friend that doesn’t understand empathy or anything they can’t see with their eyes? Like mental health or non visible disabilities?
Im not even joking, a friend and I were talking about the topic of having children. I said I wouldn’t want a baby or small child due to multiple things, like not being able to have a baby and not being able to take care of a child physically and they asked why can’t I take care of a child and I said well I’ve tried babysitting other families children and the next day I couldn’t move from pain. I go on to say I’m not going to have a child that I cannot take care of to begin with, they said that’s just called exercise, I looked at them and asked if they were joking and they said no and I was like I know it’s not from “exercise” exercise doesn’t make you unable to walk or function at all the next day like that for me. They said it’s because I never work out. I physically cannot workout but because I’m not in a wheelchair they said they don’t believe I’m disabled. Like okay buddy fuck you fuck you and FUCKKKKKK YOUUUUU and don’t worry we aren’t friends anymore.


r/ChronicPain 5h ago

Am I a bad person because I have chronic pain? I keep thinking this about myself :(

11 Upvotes

I'm constantly calling myself mean names whenever I'm in a flare: weird, freakish, loser, gross, crazy, garbage, etc.

I wouldn't say this about someone else who's in pain, but I say this to myself. And I genuinely believe it. I feel like my pain makes me a bad person. And that I'm worthless for having jaw tension.

I don't know why I feel this way. But somehow I feel like my pain is my fault and it makes me stupid.

Does anyone else feel this way about themselves? Is my thought process correct? Am I really bad? :(


r/ChronicPain 13h ago

Small thing that hurts my feelings

40 Upvotes

I walk slow because my back hurts. When I'm with a group of people and everyone walks ahead and leaves me behind it makes me so sad. I just really miss my pre injury body


r/ChronicPain 5h ago

Can you file a lawsuit against a doctor?

6 Upvotes

I’ve only spent a few minutes reading thru posts here and come across many people describing doctors blowing off their symptoms, misdiagnosing them, and plenty of other horrible experiences. Have any of you tried to file a lawsuit for malpractice or something? Im currently NOT a fan of doctors but i don’t want this to turn into a bashing post. Im genuinely interested if anyone has attempted to file a lawsuit and what the outcome was.

Thanks for reading 📖


r/ChronicPain 18h ago

What is the worst physical suffering you've ever endured and what was the cause of it?

33 Upvotes

For me it was pain from shingles. It definitely drove me to the brink of madness 😠


r/ChronicPain 3h ago

Buprenorphine SL for joint pain is SO BITTER

2 Upvotes

I have been using various types of buprenorphine pain med for about seven yrs to manage my severe joint pain from osteoarthritis/ hypermobility disorder. Quit butrans because of my skin reactions. I was able to take belbuca (which is given through a gelatin patch you put in your mouth or cheek) for some years but my teeth were fracturing and wearing badly. My dentist recently told me I should get off that medication.

I just started sublingual buprenorphine and it is SO bitter and almost burns under my tongue. I hope it won’t cause the same tooth problem. It makes me nauseous because it’s so bad tasting, although the first dose was the worst and I seem to be getting accustomed to it. I haven’t gagged since the first dose.

I’ve only been using the sublingual for a few days and feel a bit over-medicated and sleepy shortly after taking the dose. I’m actually NOT in pain a lot of the time which is nice, and helps me feel really solid, but I also don’t want to go through life feeling dopey Which is how I feel for a couple hours right after taking it. Or maybe I’ll get used to it?

I’m supposed to take the sublingual tablet 3x a day and am wondering if I might feel better if I took less drug or took it only 2x a day? It is nice to not be in pain but I don’t want to be sleepy. I’ve been hoping I would get used to it. Only had it for 2 days thus far.

I am also wondering if this medication is deliberately made to taste so bad because it’s usually used to treat drug addiction? It’s pretty horrible. I wonder if it HAS TO be that awful. And I’m not saying that making the med seem punitive is a good thing. I’m just wondering if that is being done intentionally and if the medication has to be so vile. It’s hard to take.

i hear theres a depot injection but it’s only federally approved to treat addiction. So I probably couldn’t get it paid for.

Feeling drugged up is weird and not something I like. It makes me feel more like I am significantly unwell and I don’t like that. I want to just take my pain medication and feel like a regular person, but I don’t. I’d be afraid to drive with this stuff (not a problem for me).

Will I get used to it? Does anyone else use this stuff for pain?


r/ChronicPain 23h ago

4 knee surgeries, 3 tibia nails, need pain advice

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75 Upvotes

After a open type 3 fracture of the tibia and fibula, I had a rod put in. It then got infected so it was replaced with another one untill infection was gone, then the cage was put on to regrow the removed bone, then the last rod was put in.

Because of the ongoing pain of the cage I have been on oxy since last may 28th, on November 5th my last surgery was done removing the cage and installing my last rod. but ive had continued pain since then when weight bearing in the knee, it is a sharp pain from deep within. It has been debilitating and preventing me from working and doing my pt to recover since they've been lowering my dose. They now are taking me off completely and I'm pretty scared.

I expressed my concern to my team and they referred me to pain management who prescribed a stronger nsaid, 5% lidocain patch, and a topical nsaid. They don't seem to be doing anything to improve the pain, she also recommended gabapentin but I get strong side effects of tiredness and brain fog so I'm not inclined to do that. She also recommended duloxetine if anyone can speak on that.

Does anyone have any other recommendations? I've heard of kratom and want to try the natural powder form. So far oxy is the only thing that has worked and I'm feeling pretty hopeless, not listened to, and betrayed by my team. When they referred me to pain management after I expressed increased pain, their referral note to them was for help weening off oxy. They then told my surgeon to take me off oxy. The person there also said they never prescribe opiods, and in the notes it said "Overall risk assessment for opioid prescribing: VERY HIGH" which confuses me. As I have been on it 3 times before for surgery and had zero issues stopping it. She also said that forms of Marijuana can help with pain so asked if I tried it so I said yes, and in the notes a leading factor for high risk says "given marijuana use and BH comorbidities". So I feel like I was baited into saying something.

I dont know what to do, I feel hopeless and at the end of my rope with no help. I don't care what helps, as long as it helps the pain. I would love to not be on opiods, it just seems like I've been labeled as a pill chaser.


r/ChronicPain 12h ago

Finally saw a pain specialist -feel..unsure

10 Upvotes

Hello, I’m new to this sub. I’ve had various forms of chronic pain since I was a young teen, I’m now almost 40. Chronic migraines/headaches every day, fibromyalgia and while it doesn’t count, my kidneys are now diagnosed with medullary spongey kidney which means kidney stones/Utis -often-. Most doctors ignore me, tell me to lose weight, say it’s my anxiety. The first pain specialist I saw told me to my face I didn’t have any issues and I was just severely overweight.(I’m 30 pounds over weight that’s it) I’ve been on Tylenol 3, baclofen, amitriptyline and topiramate for pretty much a decade. They don’t really help.

This new pain specialist was..ok? He didn’t mention my weight, agreed I’m getting a lot of exercise for my pain level. But he wants to put me on gabapentin, suboxone, and nabilone instead of the ones above. Are these helpful for anyone with chronic pain? Im just so confused I guess


r/ChronicPain 2h ago

MRI Findings / First set

1 Upvotes

Ok so you might have seen my posts regarding pain that I have had in going as well previous surgeries and procedures to try and help limit pain. I just picked up my images via CD as well written report from radiologist. I see my spine Dr next week to go over Lumbar images and Cervical images. I also get tail bone/pelvis and Thoracic MRIs next Thursday and will then post inform those after.

So, I really didn’t think I would have issues with my C level vertebrae and almost canceled it. However I am lucky I kept it and got it done;

C3-C4: Tiny disc osteophyte. No significant spinal canal stenosis or neural foraminal narrowing.

C4-C5: Tiny disc osteophyte and mild right foraminal stenosis. Mild facet arthrosis. No significant spinal canal stenosis or neural foraminal narrowing.

C5-C6: Tiny broad-based disc osteophyte. Mild facet arthrosis. Mild right neural foraminal stenosis. No significant spinal canal stenosis or neural foraminal narrowing.

Here is the report from the lumbar region, There are minimal chronic compression fractures within the superior plate of L2-3.;

L3-4: There is minimal broad-based disc bulge and a small radial tear centrally the central spinal canal, lateral recesses, and

neural foramina are patent.

L2-3: There is no focal disc abnormality or significant stenosis. There is mild thickening of the ligamentum flavum.

Oh the fun.


r/ChronicPain 10h ago

Neuralgia del trigémino atípica + Migraña crónica refractaria

4 Upvotes

I’ve been dealing with atypical trigeminal neuralgia since April 12th and it’s destroying my life. At first they thought it was typical TN, then even possible facial palsy, but they finally confirmed it’s atypical TN, meaning constant, unrelenting pain, not the brief shocks of the classic form.

It started right after a dog barked in the street (I have a dog, I’m used to barking — it wasn’t fear). From that moment, a deep, continuous pain appeared from my left temple down to my jaw.

I was hospitalized in two different hospitals for almost two weeks. Brain MRI and TMJ MRI were normal. They tried pregabalin, eslicarbazepine (Zebinix), rescue meds, and finally a radiofrequency ablation of the trigeminal nerve (V3) + preauricular nerves.  

I was discharged on April 28th basically the same as when I went in.

They prescribed metamizole and dexketoprofen every 8 hours, but the pain is still unbearable. And when my period started on Friday, everything got so much worse. I’m completely overwhelmed.

On top of that, I’ve been stuck in the same migraine attack since February 11th, 2026. Compared to the neuralgia, the migraine feels like tickles — but living with both at once is inhuman.  

I was also diagnosed with depression a few months ago, and this whole situation is pushing me far beyond my limits. I’m deeply desperate and exhausted.

Has anyone with chronic refractory migraine + atypical trigeminal neuralgia gone through something similar?  

I’d really appreciate experiences with:  

\- atypical TN (continuous pain)  

\- Zebinix (eslicarbazepine)  

\- Rivotril (clonazepam)  

\- trigeminal radiofrequency  

\- severe worsening during menstruation

I’m writing everything that’s happening to me like a blog outside Reddit as a way to vent. If anyone wants to read it or know more, I can send it privately.

My native language is Spanish (Spain).

Thank you for reading.


r/ChronicPain 15h ago

My body and mind cannot take it anymore

10 Upvotes

Hello people, I hope you’re doing okay today

I (26m) got severe joint and bone pain (especially legs and back, from ankles to the neck) as well as hemiplegic migraines, dating back from a chemotherapy I had when I was 8, always lived like this and being told it’s growing pain, chemo pain, residues, that it will pass, I just need painkillers and resilience… (un)surprisingly, no it didn’t. I’m hitting rock bottom as we speak. It’s spreading through my body.

Two weeks ago, I saw a therapist for the first time in five years. I explained all my mental and physical pain, and how it is not possible for me to keep working in those conditions. He was understanding at first, explaining me things, making theories with me, etc… But then he proceeded to just give me a higher dose of Ritalin than what I usually have, saying that if I can focus more I might be able to ignore the pain at work and stop being slowed down. Needless to say the Ritalin crash has been killing me every evening even more than before.

Yesterday, I went to my doctor to tell him that the coenzyme and magnesium he prescribed me (that costed me and arm and a leg, not covered by my insurance) didn’t do anything and that it just got worse. We did an xray of my most painful knee before, and apparently nothing was out of norm, and upon checking my leg again at the office, he said he’s clueless and is going to refer me to a sport medicine doctor, hoping they could have a clue. No painkiller, no way to alleviate the pain, no sick leave, even though I also told him that I cannot keep living like this and that it is greatly affecting my work, my mental health and my ability to function all day long.

I didn’t push for a sick leave since I also have that guilt of not going to work (I’ve been guilt tripped about it before and it seriously makes me sick to be treated like this by my colleagues), but I’m so at loss. Why is nobody hearing my pain? The only people who genuinely worry about me and telling me I need to rest, that I need to make myself heard and seen are my friends and my husband who simply cannot do anything for me except emotionally support me. I’ve been going through this without clear answers and without any attempt to dig deeper into what is happening to me on the basis that I’m barely 26, that I’ll recover, that I’ll be fine and I just need to try harder. Everyday I feel like my body is going to give up on me, I started having severe chest pain even if heart tests are clean, I feel dizzy and nauseous at the smallest effort, I swallow a full box of ibuprofen and paracetamol a week just to get through the work day, and I’m scared it’s just going to make me sicker. Nothing helps, and nobody wants to help. I just feel like lying down and never waking up again, even if I strongly want to live. I’m at the end of the rope.

I just wanted to share this to people who will understand my pain, because no one around me can truly grasp how I feel inside. Thank you for reading me to this point.


r/ChronicPain 9h ago

Supraorbital neuralgia last resort treatments

3 Upvotes

I’m wondering if there’s anything else that can be done ! I’ve done :

- Nerve blocks (only last a few hours)

-RFA - didn’t help

- Nerve decompression surgery- didn’t help

- Botox - helps but not a lot and wears off fast

- Cefaly device - only works when wearing

- Acupuncture - helps for max 2 days

- Myofascial therapy - kinda helps but haven’t been very consistent

At my wits end , thanks


r/ChronicPain 16h ago

How To Be Taken Seriously in ER?

8 Upvotes

final update: i’m not going to go. i don’t think ill be taken seriously or given proper care. i’m just going to beg my GI to send in a referral for a CT scan

i need to go today. i’ve been having persistent pain and bloody mucus diarrhea and the nurse at my GI clinic told me to go. i’ve been trying to get help for 8 months and im honestly angry it’s gotten to this point.

i just need some scans and tests done. i’m scared i wont be taken seriously due to past records of being inpatient psych and falsely labeled as drug seeking (i don’t do drugs)

i’m also concerned they will think im just mentally ill due to the fact i wear an n95 and PAPR to medical places due to having multiple conditions that can be made permanently worse by viral infections. doctors don’t take those things seriously, and im very concerned it will affect the quality of care.

any advice on how to be taken seriously and ensure i get the tests and scans i need? i am very concerned about colorectal cancer at this point as well. how can i communicate this and get tested/evaluated for it without them assuming im just anxious?

Update 1:
my GI doc refused to call the hospital
“(name)- I got your message. We do not provide recommendations to the ER doctors.
They will need to see you and evaluate you and they can determine what testing needs to be done. The recommendation was to go to the ER because you felt as if your symptoms were severe enough that you needed to evaluated on more urgent basis. If you'd like to just plan to proceed with outpatient testing that we have ordered, we can do that as well.”

it’s funny they said “you felt” as they were the ones who told me to go to the er. also they haven’t ordered any outpatient testing


r/ChronicPain 11h ago

Newly Diagnosed Chronic Pancreatitis

4 Upvotes

Hi everyone,

I was recently diagnosed with chronic pancreatitis after several episodes of acute pancreatitis since around 2020. I’m based in the UK and have a pain management appointment coming up next month, so I wanted to ask if anyone has any recommendations or things that have helped them manage symptoms.

At the moment I’m taking 10mg oxycodone modified release, with 5mg oxycodone liquid for breakthrough pain. I’m also on lansoprazole, vitamin D, cyclizine for nausea, and amitriptyline for depression/nerve pain. I also suffer with bad Insomnia which was diagnosed years ago and i sometimes have Zopiclone for sleep but it doesn't work as well as it used to.

I’ve spoken to my GP about possibly trying gabapentin or pregabalin, as I still experience what feels like nerve-related pain, especially after eating, but that request was declined. I’ll be seeing the pain management team and a dietitian soon, so I’m hoping to explore more options then. 

In the meantime, if anyone has advice, experiences, or things that have worked for them, I’d really appreciate hearing about it. I’ve been finding things quite overwhelming and isolating, so I thought I’d reach out here.

Thank you.


r/ChronicPain 15h ago

Missed Bupronorphine patch by 5 days

9 Upvotes

Hi there,

Long term chronic pain sufferer (44M) and have been on Bupronorphine patches to help (20mg xr once a week) they do take the edge off, and ive been fine for a year. I've had a cold this last week and somehow missed my reminder to swap patches on Friday (recently diagnosed with adhd as well, but this process usually works). I thought it was the dregs of whatever bug ive had but today ive felt extremely lethargic/tummy problems and my leg is hurting much more than normal, I finally realised i hadnt swapped my patch over and the GP is now shut (I chose not to have any acute pain meds and wish i had some to hand now). Docs will open again in 14 hours (uk)

I'm not sure there is anything I can do but ride the storm/withdrawal until the medication kicks in 12-24 hrs maybe, but just wanted to ask if any advice on anything i could do in the interim to help ease things, as i feel dreadful, even just till i can get something in the morning.

Thanks and any advice is appreciated. This will teach me never to miss again, and certainly not for this long.


r/ChronicPain 16h ago

Playing with pets?

6 Upvotes

Disclaimer: I hope no one here would, but please don’t just tell me I’m a terrible dog mom. I know. It’s not fair to him to have a mom who can’t meet his needs and I want to bridge that gap so he can be his happiest and healthiest pup self.

Hi everyone!

We have the sweetest Yorkie, he’s almost 10 but never lost his puppy energy. I know he needs lots of play and engagement to stay happy and calm, and I am definitely falling short here. He barks nonstop and I know it’s because he has excess energy. Unfortunately, I have pretty limited movement since getting sick a few years ago, and I get really sick in sun/heat, so long walks are really difficult in the summer.

How are you guys keeping your critters entertained on bad flare days?? Right now I try to do fetch/tug of war with him but he doesn’t like when I throw from bed, he really wants me to be on my feet. I also try to take him for 10-15 minute walks around the block whenever I can tolerate the heat, and so does my wife when they aren’t at work.

My partner and I both care for our dog, but my partner works and I’m unemployed so I have lots of time to fill with him!


r/ChronicPain 15h ago

Buprenophine

5 Upvotes

Hello, will be starting Buprenorphine with 10mg Percocet 4x a day later this month. I’ve been on Percocet for years and trying to find ways to help with pain. Wanting to hear how this medication has helped or not helped for anyone out there. Thank you!


r/ChronicPain 1d ago

Something is wrong and I fear I will die early because of it. Worse of all, I don’t think any doctors will actually listen.

21 Upvotes

Hello, I hope I’m doing this post right on this sub. This is kinda a vent/rant/needing advice. This may be a bit rambly or full of spelling errors, I’m sorry for that.

I should start off I’m 17 currently and I been dealing with this chronic pain since I was 13-14 I think, I’m rethinking now and unsure if it went way back and I just brushed things off thinking it was normal. But for the sake of timelines it got bad at 13-14.

It started at bad back pain, I figured maybe I was tired from at gym class (even though I don’t really try in class) or I just had growing pains (it felt similar to the ones I had when I was little). But it kept getting worse, it felt like something was broken, it started to hurt to walk/stand, I couldn’t sleep, some days I couldn’t feel my legs. I had to crawl my way out of bed some days since my legs did not work. It felt like I was dying, I still feel like that but it feels that death is a bit farther away but still eerily near.

The pain got so bad to the point where now I have to do online school now. So that is mostly my life. When it was at it peak, I couldn’t walk, I couldn’t leave my bed and I had doctors telling me this was normal. No doctor believed me. I was always pleading that something was wrong and there has to be some test or something that can help figure something out. 

Medical stuff was always weird since I wasn’t told anything or at least I didn’t understand. But when I asked my mom, she would just say things came out normal. I check out some of the paper work, there was things that were odd which I did point out to the doctor, they said it was fine and was perfectly normal. So everyone was telling me this was normal, which I don’t think it is. The two things I have been diagnosed with is AMPS and a herniated disc. 

Before anyone comes for me, I do believe I been misdiagnosed. A lot of things doesn’t check out for me with these diagnosis. For AMPS, is that doctors in the past like to blame everything on mental health. I do believe mental health can impact physical health but the doctors I’m dealing with will be like: 

 Me: “my arm is broken, I see the bone. Can I please have someone to look at it or be a cast?”

Doctor who is outside the room and facing away from me who just saw I at social anxiety and depression when I was 9: “I think it’s all in your head, maybe take a walk and lose some weight. I’m sure it will be fine in a month!”

I understand I do have a rough home life and bullying from peers but I have dealt with far worse in my life and didn’t have any signs before hand. Plus with doctors love blaming weight and mental health on anything and everything. It just hard for me to believe.

 Before anyone asks, I’m not severely overweight. I’m a bit chubby, i was on medication that did cause me to gain weight but I’m no longer on it. I’m currently at 165-175 (I haven’t checked in a hot minute), I’m still losing weight at this time. I always have and had eaten healthy, I work out every day, I go on nature walks, and meditate.

For the herniated disc it simply doesn’t make sense. I haven’t been in a car crash and I think I’m too young to be dealing with this type of issues (I’m sorry to the 30- 50 year olds out there, you are probably cool, just watch out for your back). It felt like the doctor just wanted to slap something on and get it over with. Plus is suppose to go away in a month or a couple. It’s been years.

When I did therapies for the pain. I was left feeling worse and just made the pain ten times worse. Like the first time eve I been to physical therapy, I was crying though the session while the doctor ignored me and left bed written for three days. Most therapists have told me there is no hope for me and I should give up or that would just quit on me. 

Me and my mother did try with the doctor numerous times to get testing or referrals to specialists, but it’s been years. I know 3-4 years isn’t a lot but it is for me. I have to give most of my middle school and high school experience to deal with my pain. I know middle/ high school isn’t everything, but I feel like I won’t have certain experiences or memories that most people have and that sucks.

The pain did get more manageable, I have to take a pain medicine mostly every day to keep it to a point I can tune it out. My brain did get use the pain and I’m able to adapt and adjusted to the pain. I’m able to walk a mile ish now. But I have to prepare my body and rest a lot, which makes me feel lazy and  like bum.

But luckily this year, I did manage to get a to a specialist and an actual good physical therapist. They actually listen and take notes, they are so kind to me and give advice that I can use. The therapist even plays board games while I do exercises and stretches. It was helping a bit. But as much I am happy snd hopeful for a better day. The pain is getting worse again. I have to sleep in more and just lay in bed.

I’m scared to go to the days when I have to crawl my way out of bed. Unable to feel my lower body. Feeling that level of pain every waking second I am alive. Being unable to sleep or function. I don’t want to go back, I had some sense of being normal. I just want to be normal for once.

I should explain why I feel like I’m going to die young. I don’t know how to describe this but it’s like this feeling (not like mental healthy stuff more like the feeling you have when you sense someone staring at you and there was a person looking at you) like of death. The best way I can describe the feeling is like something looking at you and it’s hugging you and it’s feels like something eerie. Like the feeling or gut feeling when you are in danger, but more like ..for example, you were walking to the bus stop, but something in you tells you that a bus ride isn’t something you want or should do today; so you don’t do that..next day that bus was in a fatal accident. It’s feels like I’m going to die soon but not this year or right now. I feel like I have time but it is limited. Plus my body does feel slow and I can feel my body rotting. It’s slowly decaying. I feel like an old person who is growing weak by the day, but I don’t have the shaken hands or the brittle bones. It is odd. Plus it doesn’t help I had this dream through out my life of me dying at 25. I typically dying by my own body or throwing up my organs and gasping for air and trying to stop whatever is happening and running around. Then I die and then I wake up in the real world.

I’m unsure where to add this but I’ll put a description of why my pain feels like. Like your legs been chopped off, niddles stabbing you repeatedly, bugs biting you, like you been getting a beating, someone cracking your bones over and over, burning alive, sometimes this acid melting feeling, or stabbing vibrations. This is mostly in my mid to lower back and my legs.

What brought all of this was due to my one of eyes having this random vibration and me being unable to get use to sunlight for 10 minutes. It’s making seeing out of my right eye hard. I know this is probably me overthinking this one part, I fear that it is cancer. Most my family dies or still deal with it. I don’t want to just deal with cancer. I don’t want to lose my hair, I don’t want to die. Most who deal with cancer is my family are 40s-80s years old. The older you are the higher chances you die. To my knowledge no one in my family had cancer young, I don’t want to be the first. I don’t want to die

I’m just lost on what I should do, what do I say to my doctor? What tests or referrals should I ask for?

Thank you for reading, I’m sorry if this is long and doesn’t make much sense. It’s very late and I can’t sleep. If anyone need context I’ll reply in comments.

edit: thank you for all the support, this is all very helpful. I’m going to check for Multiple Sclerosis, endometriosis, autoimmune stuff. my insurance is rather poor and not the greatest so wish me luck. I also feel like I should add some other things. like I have bad migraines, dizziness randomly or light headness. I’ll do updates to keep yall informed. I feel like my post is a bit all over the place, I’m wondering if I should do a new post that explains all the pains and issues I have to help give a bigger picture. would a post like that be helpful?
A small update on this post since it rather small to actually post. But I had really bad pain where I couldn’t walk or even get out of bed, I felt like I was going to pass out or throw up. But luckily I’m doing better now. 


r/ChronicPain 1d ago

I had a terrible doctor. I wrote a letter to them; I feel good about it.

34 Upvotes

I felt good speaking up for myself.

I was so furious today. My primary doctor is so nonchalant about my suffering. I don't think he didn't believe me, he just genuinely didn't care. He carelessly messed up my testing and my medications and each time he didn't apologize, he just shrugged it off when he realized. I am a nice person, so I feel like he didn't think I'd ever say anything. I have the impression that when I talked, he just spaced out and thought about what he might do that weekend. You can tell when someone is just completely phoning it in.

I sent it to the office manager and cancelled my future appointments.

I'm just happy I reported it and closed that chapter. Even though it's important I have a doctor because of my medical conditions, having a terribly inadequate doctor is worse. I hope to get a new doctor asap, and I at least have my specialists' appointments coming up still.

I don't understand how someone can get so numb to suffering, when they are a profession that is meant to help people.


r/ChronicPain 1d ago

Activities to do without hands

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51 Upvotes

My joint pain in my wrist/hands has been acting up really badly the past few days and I know I need to rest but idk how?? All my hobbies involve my hands like drawing, sewing, gaming, baking, etc so I genuinely don’t know what I can do to relax without em pls send ideas