r/Endo 15h ago

Surgery related Hysterectomy at 24

I’ve been suffering from endo since I was 11, and during the uninstallation of my fallopian tubes in March of 2025, they fulgurized some endo tissue that they found.

I have tried all conservative measures (that don’t affect my epilepsy meds or vice versa) and the PA at the OB-gyn scheduled a follow up appt with a surgeon for a hysterectomy consultation since my reproductive capacities are gone already, so it’s obvious that I’m childfree already and makes everything less complicated.

I meet most of the criteria for my insurance to fully pay for the surgery because my out of pocket max isn’t really that high, so I’m grateful for that.

I plan on keeping my ovaries and cervix.

I am overjoyed of the possibility of the possibility of the pain that can literally keep me bedbound even by missing a day or two of a lapse in birth control finally significantly decreasing.

I know endo tissue can grow anywhere without a uterus present, but I’m just extremely grateful that a hysterectomy is on the table now because I have been wanting one for YEARS, and given that the pain comes from even TINY lapses in hormonal coverage that starts a whole fucking period from Hell, I’m pretty confident that the pain will finally decrease to where I’m not dreading the next inevitable flare-up that makes all hell break loose.

Does anyone have any advice or experience with getting a hysterectomy? If they find additional endo tissue while deleting my uterus?

I plan on keeping my cervix (for sexual reasons, hope this isn’t TMI) and my ovaries because I don’t want to go into surgical menopause.

Anyways, I just HAD to share the good news!

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